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Friday, March 9, 2012

In which I wish I knew if I would be feeling better forever

My doctors have me on a host of medications for my Sjogren's Syndrome. Everything from an immune suppressant to anti-inflammatories, both steroids and non. I have mentioned in a early post that I started an anti-inflammatory diet at they request as well.

The long and the short of it is that I am feeling better than I have in 10 years. Yes that good. Yes that long.

The negative is that Little Bear is miserable in school. I have mentioned that before. He continues to be asked to be homeschooled again. I feel horrid saying no, but I was in no position to when I was feeling sicker (which is why we stopped), and I just don't know if this will stick. Everyone with SS gets flares, but what if this is a fluke and I go back to my old normal.

I am considering online child led programs, or distance learning private school. These would let him get a consistent education, even if I am having a bad day. He will continue to have Sunday School, and Tae Kwon Do to insure he is used to learning in more social environment.

All these concerns are on my mind especially since on top of my health I need to consider my job, which while work at home, is starting to ramp up.


Michelle said...

I've been MIA in the blogging world but while cleaning out Google Reader your post caught me attention. I'm sorry to hear your not feeling well. You're in my thoughts and prayers. We had our daughter in cyber school and it was a wonderful experience. She had so much one on one contact with her teacher. They send you all the supplies to include a computer, student's books, teacher's books, science projects and art supplies. We never unpacked the computer which made it easier to send back when we were done. I loved being apart of her learning experience but not having to plan it all out. Feel better soon.

Pearl said...

I came across your blog through link referral. I am sorry to hear you have SS. I am on steroids too (high doses this month), my own antibody is attacking my kidneys. It's hard to be sick when you're a mom. I can relate to that. I am still holding on to the Lord's promises, He is my hope and source of peace and strength.
Hang in there and God bless!

Kelly JS said...

New to your blog! Sorry to hear about your illness. Check into K-12. Free online public school. Should be where you are too. Hope you get better soon!

momteachingtwo said...

Sadly K-12 is not free in my state. I payed for it when the kids were younger and I was HSing, and loved the program, but the costs for 2 kids full time is almost as much as private school.

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